Each September, we celebrate another "transplantiversary" in honor of Julian's brave struggle and the amazing progress that continues to be made in the treatment of aplastic anemia and other bone marrow failure diseases. We are so thankful for Julian’s health, and our wonderful Seattle Children’s Hospital family and the researchers who work so hard behind the scenes to discover that next cure that will save a child’s life. This is why we formed Julian's Dinosaur Guild and why we support SCH.
Aplastic Anemia MDS Foundation
National Marrow Donor Program
Pete Gross House
Seattle Children’s Hospital
Julian’s Dinosaur Guild was created in 2012 to raise money for research into better treatment options for aplastic anemia and other bone marrow failure diseases in children. During the first three years, our Guild held annual fundraisers, raising over $75,000 which went straight to funding life-saving research in this field at Seattle Children’s Hospital, working with Fred Hutchinson Cancer Research Center under the leadership of Dr Akiko Shimamura. We are now focusing our fundraising efforts on exciting clinical research being conducted by Dr. Lauri Burroughs, Julian’s lead transplant doctor.
Since inception, we’ve volunteered our time and energy to help other Guilds with their fundraisers, provided education on bone marrow failure diseases and the importance of being on the bone marrow donor registry to companies such as Microsoft, and worked on various projects that support the work of Seattle Children’s Hospital staff and families receiving care. Guild President Anne Wetmore has served on the SCH Guild Association Fund Raising Committee for three years. Julian’s Dinosaur Guild is based in West Seattle, but includes members from the greater Seattle area as well as Bremerton and Olympia.
Julian Blackwell is the heart and soul behind Julian’s Dinosaur Guild. He was diagnosed with severe aplastic anemia at age three in December 2010. His courageous fight to overcome this life-threatening disease, which ultimately required a bone marrow transplant in September 2011, continues to inspire those who know and love him. Though he’s reached a level of maturity rarely seen in one so young, he remains a devoted dinosaur fan who continues to grow and thrive. He loves to play ball, climb trees, explore, play with his buddies, and is able to do regular kid stuff thanks to his transplant.
Julian and his family have received the highest level of care from Seattle Children’s Hospital and Seattle Cancer Care Alliance. We are very fortunate to have Dr. Burroughs on our side. She is conducting exciting research that will further improve treatment options for kids with bone marrow failure disease. We also appreciate the research Dr. Shimamura continues to conduct through her work in Boston. Our Guild’s continuing primary focus is to raise money for the excellent research being conducted by Dr. Burroughs at Seattle Children’s – research with the potential to change the way transplant teams worldwide treat severe aplastic anemia. We know first-hand that research saves lives and improves the quality of those lives. Still, many children don’t survive bone marrow failure diseases. We remain committed to supporting continued research.
How you can get involved
Tell your friends, family neighbors about us
Sign up to be a bone marrow donor
and get others to do so
Support any Seattle Children’s Hospital, Seattle Cancer Care Alliance or Fred Hutch Cancer Research Center fundraisers